The Alpha-1 Foundation support group, Strickly Alphas, will be hosting their third annual Strickly Alpha River Walk on Saturday, Oct. 21, at the Welcome Center. All proceeds from the walk will go directly to the Alpha-1 Foundation.
“We want to find a cure. We want to be able to help someone that is just being born today. People need to know that Alpha-1 is something they need to be tested for. The walk raises awareness for Portsmouth, Ohio, were we have a high rate of the disease in our area, primarily due to carriers of the gene staying in the area and marrying one another, transferring the genes to their descendants,” said Strickly Alpha leader Jesse Strickland.
Alpha-1 Antitrypsin Deficiency, or Alpha-1, is a hereditary condition that is passed on through genes from parent to child. The condition may result in liver disease in infants, children, and adults and serious lung disease in adults. Common symptoms of Alpha-1 are wheezing, shortness of breath, and chronic cough relating to lungs, and Jaundice and swelling of abdomen due to the liver.
Alpha-1 is thought to affect 1 out of every 2,500 people in the U.S and has been identified in all races and ethnicities.
Alpha-1 often goes undetected for years, and sometimes takes 3-5 different doctors and between 5-7 years from the time lung symptoms occur to make a proper diagnosis.
The Strickly Alphas Support group stresses the important of being tested for Alpha-1 Antitrypsin Deficiency, due the condition being extremely common although sadly under-recognized.
The Strickly Alphas River Walk is held in memory of Dan Kirby, who passed away due to Alpha-1 liver complications.
Last year the walk raised approximately 7,000 dollars that went towards Alpha-1 research. This year Strickly Alphas hopes to raise 10,000-15,000 for the foundation. The walk begins at 11 am, with registration beginning at 10 am. Refreshments will be provided, along with an Ohio State Raffle, Silent Auction and live music.
Reach: Ivy Potter (740)353-3101 Extension 1932